Sarah Ford | January 13, 2015

Lawmakers Look To Improve Care For Kids With Complex Needs

Finding care for children with medically complex or rare conditions can force parents to tap into networks of highly specialized physicians and hospitals scattered around the country.

This is especially challenging when the children are covered by Medicaid, because each state-run program has a different benefit package, payment structure and provider network. Conflicting regulations and paperwork requirements can delay treatment and lead to unnecessary hospitalizations. Medicaid’s state-based rules also have thwarted efforts to develop a national clinical database researchers could use to find ways to improve the care of children with rare conditions.

A new bill in Congress would amend the 50-year-old Medicaid law to make it easier for health care providers in different states to coordinate the complicated care of these kids.

The proposal — the Advancing Care for Exceptional Kids Act — also calls for the creation of a national database of Medicaid claims data that researchers could use to study complicated conditions that affect one in 25 children nationwide.

>> Continue Reading

Get Resources and Insights Straight To Your Inbox

Explore More Articles

January is National Poverty in America Awareness Month

January 6, 2025

Hunger and malnutrition, limited access to education and other basic services, social discrimination and exclusion, disabilities, restricted access to participation in the democratic process. These are…

Read Article

How to Take Your Business’s Employee Volunteer Program to the Next Level

January 6, 2025

Click Here to Tweet This Message! Whether your program was started 10 months or 10 years ago, periodically stepping back to take stock of your #EmployeeVolunteer…

Read Article

Open Position: Customer Service Coordinator (Remote-Part Time)

November 13, 2024

Position Title:  Customer Service Coordinator (Remote – Part Time) Department:  Charitable Funds Management Solutions  We are a non-profit charitable organization looking for skilled individuals who…

Read Article

Get Resources and Insights Straight To Your Inbox

Receive our monthly/bi-monthly newsletter filled with information about causes, nonprofit impact, and topics important for corporate social responsibility and employee engagement professionals, including disaster response, workplace giving, matching gifts, employee assistance funds, volunteering, scholarship award program management, grantmaking, and other philanthropic initiatives.

newsletter-mock