We are committed to improving the quality of life for those impacted by Epidermolysis Bullosa in the U.S. by developing and executing free programs and services, while funding the most innovative research directed at symptom relief and a systemic cure.
DEBRA of America
Epidermolysis Bullosa (EB) is a painful, disfiguring, disabling, sometimes fatal, genetic disorder that is characterized by skin so fragile any friction causes painful blisters and burn-like wounds. Present at birth, this disease affects people throughout their lifespan and sufferers may be mildly or severely affected. debra of America sponsors research for a cure and provides free programs and services for those with EB, their families, and medical professionals. A specialized Registered Nurse maintains a toll free hotline dedicated to EB care inquiries. The debra Care Conference is conducted at no cost to participants with EB to attend. The Wound Care Distribution Program provides free emergency supplies of wound care dressings and non-prescription medication to those with EB who are in need. Families are provided with a full support system to help them give the best care possible to their family member with EB.