Sarah Ford | March 3, 2015
It’s Not Just the Place, It’s the Community That Makes The Children’s Inn at NIH Special
Isaac Barchus is a sociable 10-year-old from Omaha, Nebraska. He has been coming to The Children’s Inn at NIH since he was two, when his mother, Kathe, a nurse, researched diligently to find answers for her son. “We didn’t know what was wrong and the doctors back home didn’t know what he had, so I started researching on my own,” she says. When Kathe emailed pictures of Isaac to the medical team at National Institute of Arthritis and Musculoskeletal and Skin Diseases and received an encouraging response, their journey began. His National Institutes of Health (NIH) doctors diagnosed Isaac with CANDLE syndrome, a disease that includes fevers, skin rashes, and developmental delays. Isaac was the first to enroll in a study to test an experimental drug, and although he has had his ups and downs, Isaac has been doing better overall.
Get Resources and Insights Straight To Your Inbox
Explore More Articles
Open Position: Customer Service Coordinator (Remote-Part Time)
Position Title: Customer Service Coordinator (Remote – Part Time) Department: Charitable Funds Management Solutions We are a non-profit charitable organization looking for skilled individuals who…
Read Article
National Alzheimer’s Disease Awareness Month
President Ronald Reagan designated November as Alzheimer’s Disease Awareness Month in 1983 when there were less than two million people suffering from the disease. Since…
Read Article
National Scholarship Month/National Education Month
National Scholarship Month/National Education Month aims to build awareness of scholarships and opportunities in higher education. Established in 1998, it recognizes communities, organizations, and businesses within the…
Read ArticleGet Resources and Insights Straight To Your Inbox
Receive our monthly/bi-monthly newsletter filled with information about causes, nonprofit impact, and topics important for corporate social responsibility and employee engagement professionals, including disaster response, workplace giving, matching gifts, employee assistance funds, volunteering, scholarship award program management, grantmaking, and other philanthropic initiatives.
